(1) The Legislative Assembly finds that:
(a) The DNA molecule contains information about the probable medical future of an individual and the individualís blood relatives. This information is written in a code that is rapidly being broken.
(b) Genetic information is uniquely private and personal information that generally should not be collected, retained or disclosed without the individualís authorization.
(c) The improper collection, retention or disclosure of genetic information can lead to significant harm to an individual and the individualís blood relatives, including stigmatization and discrimination in areas such as employment, education, health care and insurance.
(d) An analysis of an individualís DNA provides information not only about the individual, but also about blood relatives of the individual, with the potential for impacting family privacy, including reproductive decisions.
(e) Current legal protections for medical information, tissue samples and DNA samples are inadequate to protect genetic privacy.
(f) Laws for the collection, storage and use of identifiable DNA samples and private genetic information obtained from those samples are needed both to protect individual and family privacy and to permit and encourage legitimate scientific and medical research.
(2) The purposes of the genetic privacy statutes are as follows:
(a) To define the rights of individuals whose genetic information is collected, retained or disclosed and the rights of the individualsí blood relatives.
(b) To define the circumstances under which an individual may be subjected to genetic testing.
(c) To define the circumstances under which an individualís genetic information may be collected, retained or disclosed.
(d) To protect against discrimination by an insurer or employer based upon an individualís genetic characteristics.
(e) To define the circumstances under which a DNA sample or genetic information may be used for research. [Formerly 659.705; 2003 c.333 §2]
Note: See note under 192.531.Section: Previous 192.525 192.526 192.527 192.528 192.529 192.530 192.531 192.533 192.535 192.537 192.538 192.539 192.540 192.541 192.543 Next
Last modified: August 7, 2008